Some girls are just born with glitter in their veins

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party

December 9, 2013 Love4JLK

Back home and got all the “good pics” out of my camera so I can post about all the fun we have had lately. The holiday party for Bass Center patients. Walking in I noticed the sign….”survivors party”. This was the first party of its kind…for some reason I expected it to be only current […]

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piece

December 6, 2013 Love4JLK

I have been sitting her for well over an hour…I don’t know what I want to write but I know I want to write…. We had a holiday party with the Bass Center patients (childrens cancer) but I will blog that later since all my pictures are on my camera and I don’t have the […]

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santa

December 4, 2013 Love4JLK

She will always believe in Santa. This weekend we got to see Santa (shhh for her it was the 2nd time). and it struck me. Jennifer will always believe in the magic of Santa. He knew her name and even remembered what she had asked for when she saw him at the mall. The joy […]

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sisters

December 3, 2013 Love4JLK

The day after Thanksgiving, me,┬áTony and the girls woke up early to get to Stanford for treatment. It was a special treat for Jennifer to have Daddy there with her. Since it was the day after a major holiday it was a smaller crew and people we didn’t really know. (all still amazing) The surgery […]

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thanksgiving

December 2, 2013 Love4JLK

  Thanksgiving marked one month since finding out our daughter has DIPG. One month from finding out these holidays will more than likely be our last together. I am thankful… -7 kids die daily from cancer. My child wasn’t one of them. – Jonathan loved the build a bear his sister made for him. -The […]

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want

November 27, 2013 Love4JLK

Up researching Christmas gifts for the kids. Mostly books since they love to be read to. Never would have imagined I would be trying to find books to teach my boys and baby about losing their sister. And trying to find a book to help me speaking to Jennifer about heaven and God…The good ones […]

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stolen

November 26, 2013 Love4JLK

Today after radiation she suffered a terrible headache. Usually they wait to get me to come into recovery until she is awake since she wakes so easily and happily. Today when I walked in and saw her it was very obvious she was in a good deal of pain. She had her head buried and […]

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change

November 23, 2013 Love4JLK

I am not a tech savvy mama…not by any stretch of the imagination. So me learning how to put pictures on the blog is quite an accomplishment. In doing so I have found myself lost in pictures of our kids…pre-diagnosis. Its like I don’t recognize them anymore…we are all so different….so forever changed. I remember […]

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tonight

November 22, 2013 Love4JLK

Tonight I hurt. Tonight I ache. Tonight I am sad. Tonight she giggled and laughed with all her might. Will I forget that sound? Tonight she asked why….I ask it too baby and I wish I had a answer for you. One day I will walk into her room…the one she shares with her brother […]

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honest

November 21, 2013 Love4JLK

Its so hard to try to get into a childs mind…to understand or even know what they are thinking. I want to anticipate Jennifer’s needs and fears but the kid sometimes seem to be coming out of left field. We got into a extended stay apartment today but she didn’t want to come. She was […]

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